The Institute is pleased to promote the sharing of research that helps us all better understand the way individuals process reproductive losses and helps us establish global standards for offering compassionate care.

Note: The Institute was not involved in the creation of this research, and does not necessarily endorse any opinions that may be proffered within this research. The research listed below is for informational purposes only.

– 2023 –

Working to Address the Tragedy of Stillbirth.
Stillbirth Working Group of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Council

The loss of a grandchild during pregnancy: an exploration of long-term outcomes for grandparents and their families.
Jane Lockton, Melissa Oxlad & Clemence Due

– 2022 –

Challenging guidelines on pregnancy interval following miscarriage or abortion. Study reviews over 72,000 Norwegian births over eight years

Miscarriage, Perceived Ostracism, and Trauma: A Preliminary Investigation – Eric D. Wesselmann and Leandra Parris

A Prospective Cohort Study of Seasonal Variation in Spontaneous Abortion Wesselink, Amelia K.a; Wise, Lauren A.a; Hatch, Elizabeth E.a; Mikkelsen, Ellen M.b; Savitz, David A.c; Kirwa, Kiprutod; Rothman, Kenneth J.a,e

Investigation and Validation of Molecular Characteristics of Endometrium in Recurrent Miscarriage and Unexplained Infertility from a Transcriptomic Perspective by Yuxin Ran, Jie He, Ruixin Chen, Yan Qin, Zheng Liu, Yunqian Zhou, Nanlin Yin, Hongbo Qi, Wei Zhou

– 2021 –

Hiefner, A. R., & Villareal, A. (2021). A Multidisciplinary, Family-Oriented Approach to Caring for Parents After Miscarriage: The Integrated Behavioral Health Model of Care. Frontiers in public health, 9, 725762.

Berry S. N. (2021). Providing palliative care to neonates with anencephaly in the home setting. Journal of Hospice and Palliative Nursing: JHPN: The Official Journal of the Hospice and Palliative Nurses Association, 23(4), 367–374.

Gilbert, S., Mullen, J., Kelloway, E. K., Dimoff, J., Teed, M., & McPhee, T. (2021). The C.A.R.E. model of employee bereavement support. Journal of Occupational Health Psychology, 26(5), 405–420.

Infertility-related distress and clinical targets for psychotherapy: a qualitative study by Loveness Dube, Nokuthula Nkosi-Mafutha, Ashley A Balsom, Jennifer L Gordon

Bereaved Parents: Insights for the Antenatal Consultation by Haward, Lorenz, Janvier, Fischhoff

“It’s a horrible assignment”: A qualitative study of labor and delivery nurses’ experience …” Zwerling, Rousseau, Ward, Olshansky, Lo, Thiel de Bocanegra, Harken

Miscarriage matters: the epidemiological, physical, psychological, and economic costs of early pregnancy loss, Quenby, Gallos, Dhillon-Smith, Podesek, Stephenson, Fisher, Brosens, Brewin, Ramhorst, Lucas, McCoy, Anderson, Daher, Regan, Al-Memar, Bourne,  MacIntyre, Rai, Christiansen, Sugiura-Ogasawara, Odendaal, Devall, Bennett, Petrou, Coomarasamy

Factors affecting the grieving process after perinatal loss. BMC Women’s Health, Kishimoto, M., et al

Effects of pregnancy loss on subsequent postpartum mental health, Reardon & Craver, C.

Racial disparities in mental health outcomes among women with early pregnancy loss. Shorter, JM et al

– 2020 –

Differences in post-traumatic stress, anxiety and depression following miscarriage or ectopic pregnancy between women and their partners: multicenter prospective cohort study by J. Farren, M. Jalmbrant,N. Falconieri,N. Mitchell-Jones,S. Bobdiwala,M. Al-Memar,S. Tapp,B. Van Calster

#AbortionChangesYou: A Case Study to Understand the Communicative Tensions in Women’s Medication Abortion Narratives. The Institute contributed the raw data that was analyzed in this research through our healing website AbortionChangesYou.com.

Men’s grief following pregnancy loss and neonatal loss: a systematic review and emerging theoretical model

Stress, anxiety and depression perceived by couples with recurrent miscarriage. Chen et al

Posttraumatic stress, anxiety and depression following miscarriage and ectopic pregnancy: A multicenter, prospective, cohort study. Am J Obstet Gynecol, Farren, J et al

Anxiety, depression, and social support in pregnant women with a history of recurrent miscarriage: A cross-sectional study. J Reprod Infant Psychol, Gao, L. et al

– 2019 –

The Impact of Communication Surrounding Intrauterine Congenital Anomaly Diagnoses, Shandeigh N. Berry, MSN, RN, CNOR; Karen Colorafi, PhD, RN

Maternity and Women’s Health Care, Chapter 37 – Perinatal loss, Shannon Perry

Affective and substance abuse disorders following abortion by pregnancy intention in the United States: A longitudinal cohort study. Sullins, D. P.

– 2018 –

Respectful Disposition After Miscarriage: Clinical Practice Recommendations, Elizabeth Levang et al

Impact of pregnancy loss on psychological functioning and grief outcomes. Obstetrics and Gynecology Clinics of North America, Cassaday et al

The psychological impact of early pregnancy loss. Hum Reprod Update, Farren, J.et al

Predicting need for follow-up due to severe anxiety and depression symptoms after perinatal loss. Journal of Obstetrical, Gynecological, and Neonatal Nurses, Hutti, M et al

Psychological impact of pregnancy loss: Best practice for obstetric providers. Rich, D.

Quality of life and psychological distress in women with recurrent miscarriage: A comparative study. Tavoli, Z. et al

– 2017 –

“My heart still aches with sadness”: Epidemiological Relationships Between Perinatal Grief, Major Depressive Disorder, and Personality Disorders – Lisa Michelle Burke, BA(Hons), MHSt, FT

Predicting grief intensity after recent perinatal loss; Hutt et al

Women’s persistent depressive and perinatal grief symptoms following a miscarriage: The role of childlessness and satisfaction with healthcare services. Arch Womens Ment Health, deMontigny et al.

Grief, traumatic stress, and posttraumatic growth in women who have experienced pregnancy loss. Krosch, DJ et al

Grief reactions of couples to perinatal loss: A one-year prospective follow-up, Tseng, YF et al

– 2015 –

A Unique Grief, Janice Harris, RN MSN EdS

– 2012 –

Complicated grief after perinatal loss, Anette Kersting, MD; Birgit Wagner, PhD

Tackling perinatal loss, a participatory action research approach: research protocol, Sonia Marı´a Pastor-Montero, Jose´ Manuel Romero-Sa´nchez, Juan Carlos Paramio-Cuevas, Ce´sar Hueso-Montoro, Olga Paloma-Castro, Manuel Lillo-Crespo, Cristina Castro-Yuste, Ana Cristina Toledano-Losa, Concepcio´n Carnicer-Fuentes, Jose´ Alejo Ortego´n-Gallego & Anna J Frandsen

– 2011 –

PERINATAL LOSS AND PARENTAL GRIEF: THE CHALLENGE OF AMBIGUITY AND DISENFRANCHISED GRIEF, ARIELLA LANG, RN, PH.D, ANDREA R. FLEISZER, RN, B.SC., BN, PH.D, FABIE DUHAMEL, RN, PH.D, WENDY SWORD, RN, PH.D, KATHLEEN R. GILBERT, PH.D, SERENA CORSINI-MUNT, MA

– 2009 –

Trauma of Pregnancy Loss and Infertility for Mothers and Involuntarily Childless Women in the Contemporary United States, Kami L. Schwerdtfeger and Karina M. Shreffler

– 2008 –

Helping Families Cope with Perinatal Loss, Irving G. Leon, PhD

– 2005 –

Fathers’ Perspectives During Pregnancy, Postperinatal Loss, Joann O ’Leary and Clare Thorwick

– 2002 –

FAMILY THERAPY FOLLOWING PERINATAL BEREAVEMENT, Jodie Oikonen and Keith Brownlee

– 2001 –

UNDERSTANDING GENDER DIFFERENCES IN BEREAVEMENT FOLLOWING THE DEATH OF AN INFANT:IMPLICATIONS FOR TREATMENT, DAVID G. WING, KATHERINE BURGE-CALLAWAY

Guidelines for health care professionals supporting families experiencing a perinatal loss, Canadian Pediatric Society Statement

– 1997 –

Active grief, despair, and difficulty coping: some measured characteristics of male response following their partner’s miscarriage, J.E. Puddifoot, M.P. Johnson

– 1970 –

The Mourning Response of Parents to the Death of a Newborn Infant, John H. Kennel., Howard Slyter, and Marshall H. Klaus, M.D.